SANDRA Y.L. FITZPATRICK (She, Her, Hers)

Parent Advocate & Educational Consultant

Monday, February 1, 2021

Special Education Virtual Conference

The Federation for Children with Special Needs' Annual Conference will be virtual this year!

When: Saturday, March 6, 2021


Visit fcsn.org/voc to learn about the workshops happening and to register for FCSN’s Visions of Community (VOC) annual conference which will take place on March 6th. The virtual conference will include intensive workshops on topics such as: IEPs and other special education issues, impact of trauma, self-care, health services and benefits, and transition planning, and will be offered in English, Chinese, Haitian Creole, Portuguese, Somali, Spanish, and Vietnamese. We will offer networking pre-event opportunities the week leading to conference, so make sure to register soon.


Go to fcsn.org/voc for more information and to register.

Monday, April 27, 2020

VIRTUAL HS GRADUATION OPPORTUNITY!!

THE FEDERATION FOR CHILDREN WITH SPECIAL NEEDS IS OFFERING A WONDERFUL FREE VIRTUAL HIGH SCHOOL GRADUATION TO ALL HS SENIORS ACROSS MASSACHUSETTS!

The Federation for Children with Special Needs sympathizes with Massachusetts families who are adjusting to students finishing their school year from home. With this comes knowing that our children will not be able to participate in school activities and milestones including graduation. We also know the resilience our community has especially when it comes to reimagining new ways to celebrate moments in our children’s lives. To pay homage to the resilience of our children, FCSN wants to help you celebrate with a virtual graduation! FCSN believes in promoting an inclusive community so we are inviting students living with and without disabilities. 

If you are a parent or caregiver to a HS senior would like to have them featured in our virtual graduation, please send us their name, school or program, along with their yearbook/senior photo to klarose@fcsn.org by Friday, May 8th. Please feel free to include their yearbook quote or even their favorite quote to script! Please be on the lookout for our celebratory tribute in early June to the amazing Class of 2020.

Tuesday, April 7, 2020

FREE WEBINAR: How to Address Social and Communication Needs of Children during COVID 19 school closures

Special Education & COVID-19:
A Weekly Chat

Thursday, April 9th at 8 PM
 
As part of our COSA response to the COVID-19 outbreak, MAC will be holding its next weekly virtual chat for parents of children with disabilities on Thursday, April 9 at 8 pm to connect with each other and learn tips about how to address the needs of your children during this pandemic while they are home from school.

We are also hosting a Spanish weekly chat series for parents (Charla Semanal) please click here to view upcoming dates.

For our next chat, join Pamela Ely, a speech therapist who is the owner/director of the Ely Center, as she talks about how to address social and communication needs of children during COVID-19 school closures.

This chat will be helpful for parents of children with all types of disabilities, including autism.

Please note that registration is required in advance of this meeting.
Please click here to register.


Please bring your questions. We want to hear from you!

Join us for our weekly chat:
Thursday, April 9, 2020
8:00-8:30  PM
Add to Calendar:
     

PLEASE NOTE - Registration is required in advance of the meeting:
Click here to register
After registering, you will receive a confirmation email containing information about joining the meeting.

Questions? Email communications@massadvocates.org
More
Upcoming Events
Spanish Weekly Chat Series: Charla Semanal
Helpline
COVID-19 Resources
If you are able, please consider making a gift to support our COVID-19 Education Helpline at a time when families need us more than ever before:
 
DONATE
Have a question? Feedback on our new website? Please email Lilia Melikechi, Communications Manager, at communications@massadvocates.org

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Monday, February 10, 2020

FREE Tourettes Workshop


SUPPORTING CHILDREN WITH TOURETTE'S AND OTHER TIC DISORDERS

FREE Workshop Sponsored by:

The Support Network

A Discussion with Dr. Peter Thunfors, Clinical Supervisor, Child Behavioral Health of Baystate Health

FRIDAY, Feb. 28, 2020
12:30 - 1:45

SCAN 360: 11 Wilbraham Rd
Spfld., MA. 01109



RSVP: Jan Lamberg;   jlamberg@wmtcinfo,org;  call/text: (413) 387-7161



Left door entrance of the Kennedy-McGoodwin Medical Bldg.; 2nd floor, Conference Room
PARKING: additional parking in Colton St lot (inside the chain-linked fence)

Tuesday, January 7, 2020

FASD WORKSHOP IN HOLYOKE MA.

FASD BASICS, a 1-day workshop for parents and professionals

Fetal Alcohol Spectrum Disorder (FASD) is a brain-based physical disability with behavioral symptoms.
The FASD BASICS workshop introduces a neurobehavioral approach to living with, caring for, and working with individuals and families impacted by FASD. It acknowledges the source of behaviors: the brain, and provides a set of research-based best practices for helping people with fetal alcohol exposure.
The audience for this workshop is parents and caregivers of people with an FASD, as well as professionals in education, social work, counseling, developmental disabilities, mental health, substance abuse, justice, and family support.
In this 1-day workshop, we will cover:
  • Facts, figures, and statistics about FASDs.
  • Diagnosis.
  • The Neurobehavioral Profile of FASD: primary and secondary characteristics
  • Suggestions for accommodations and environmental change
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Date/Place:
Friday, Feb. 7, 2020
9:00 - 4:00
MGPHPCC, 100 Bigelow St., Holyoke, MA.
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This training is based on current research and writings around best practices when parenting, working with, or supporting persons with FASDs, and include many personal anecdotes, stories, and examples of positive change.
Lunch and snacks will be provided. There is no childcare for this event.
Cost: $45. Scholarships are available by emailing adrienne@fafasd.org
About the trainer:
Adrienne Bashista is the co-founder of FAFASD and Training Director. She has been educating others about FASDs since 2013. Her focus is on FASD, its impact on families, and best practices for helping children with FASD succeed at home and at school. She is located in Massachusetts but travels throughout North America to deliver workshops and trainings.
She is a writer, special needs parent advocate, entrepreneur, and teacher. Her youngest son was diagnosed with FASD in 2011 after searching for answers for 6 years.


This workshop has changed the dynamics in our home for the better. I would recommend it to anyone who parents or has contact with a developmentally delayed child, including teachers and grandparents. ~Linda Q, Mom to 3 Special Children

Thursday, October 3, 2019

Transition Resource Fair in Western MA.

Share:
The Transition Resource Fair is October 16 at
Hadley Farms Meeting House!
This event was previously sponsored by Family Empowerment and DDS. The Fair comes to you this year from the Family Support Collaborative of Franklin and Hampshire Counties (Family Empowerment, The United ARC and DDS)*.

Panel Discussion: 5-6pm, RSVP required, limited seating available

Exhibitor Fair: 6-8pm, RSVP is not necessary
THE TRANSITION FAIR IS A FREE COMMUNITY EVENT!

The Transition Resource Fair focuses on future options for high school students with special needs and autism as they plan and prepare for their next steps once out of school.

The event provides an opportunity to meet exhibitors from local and inspirational adult support service providers, and to hear from a panel of people from a variety of organizations who will share their individual expertise. The Fair is a free resource event open to the entire community. Beverages and light appetizers will be available.

Exhibitor Fair
The Exhibitor Fair is from 6-8pm and will showcase programs for college and post-secondary education options, job training, career investigation, day and recreation activities, living options and special needs financial planning. RSVPs are not necessary for the Exhibitor Fair.

Panel Discussion
The Panel Discussion takes place from 5-6pm and your RSVP is required HERE .

Panel Discussion Speakers

There will be time after the presentation to follow up with the presenters at their exhibitor tables during the Fair.
Transition Resource Fair
October 16, 2019, Hadley Farms Meeting House, 41 Russell Street Hadley

Panel Presentation: 5:00-6:00 p.m.
Exhibitor Fair: 6:00-8:00 p.m.
3 ways to attend and register

  • Attend the Exhibitor Fair (6-8pm): you do not need to RSVP!

  • Attend the Panel Presentation (5-6pm): Please RSVP for this presentation HERE. Space is limited.

  • Be an exhibitor: there are a few spots left, register HERE.
*Family Empowerment, The United ARC, and the Department of Developmental Services - Franklin Hampshire office, have created the new Family Support Collaborative of Franklin and Hampshire Counties to combine our resources and expertise for some regional projects. Together, as Family Support Collaborative of Franklin and Hampshire Counties, we will host the Transition Resource Fair in Hadley. A second Collaboration Transition Resource Fair will take place in the Athol area in the spring of 2020. We look forward to seeing you!

Wednesday, August 14, 2019

USE YOUR FSA ACCOUNT TO PAY FOR IEE!

That's Eligible?! What special needs tests are covered by FSAs?

Many people don't realize just how many expenses are FSA-eligible. Unfortunately, figuring out exactly what's covered can be confusing, especially when it comes to less routine appointments like testing for learning disabilities.
The process of diagnosing and treating a learning disability can be a long and stressful process, with medical expenses that can add up quickly. Using your tax-free dollars is a great way to help lift some of the financial strain.
Here's what you need to know about how your FSA can help you and your family when testing and treatment is needed for a learning disability.

Testing for learning disabilities

The term learning disability refers to a fairly wide variety of conditions including dyslexia, dyscalculia, blindness, hearing impairments, specific congenital disabilities, autism, and nervous system disorders. Testing for many of these conditions is expensive, and it often requires more than one test for a specialist to make a correct diagnosis.
Unfortunately, your health insurance will probably only cover a fraction of these costs. The good news is that most tests that diagnose learning disabilities are considered eligible expenses.
For testing to be considered an eligible expense, it must be recommended by a doctor. And in most cases, your administrator will require a letter of medical necessity for reimbursement. This letter must detail why the testing is necessary and how it will benefit your child, as well as how long treatment is expected to last.

Treatment for learning disabilities

Treatment types will vary widely depending on the type of learning disability. So, a child with visual impairments will need a tutor to teach them braille, while a child who is deaf will need to learn lip reading and sign language.
As long as a doctor recommends therapy, education or a combination of both to help your child overcome their learning disability, these are considered eligible expenses.
Other FSA eligible treatments for learning disabilities include:
  • Speech therapy
  • Multimodal teaching
  • Occupational therapy
  • Physical therapy
  • Assistive technology which can include items like computers, typing telephones, and magnifiers
  • Reading or mathematics tutoring
Your child's doctor may recommend more extensive treatment, like attending a school that specializes in helping children overcome learning disabilities. As long as a doctor prescribes this course of action, tuition and other associated expenses like meals and boarding are eligible for FSA reimbursement.
If your child wants to participate in extracurricular activities that aren't part of the recommended treatment, however, you'll have to cover these expenses out-of-pocket.
If you need to travel to see a specialist for a diagnosis or treatment, your can even use your FSA to help cover those costs. Expenses like gas, tolls, parking, and public transportation fares are all eligible for reimbursement, provided you get a doctor's letter.

What isn't eligible?

While you can get your child tutoring without an official diagnosis to help them overcome difficulties in school, without a doctor's letter, these costs are not FSA-eligible. And if your pediatrician ever decides that treatment is no longer necessary, yet you feel it's best for your child to keep seeing a specialist for their condition, any new expenses you incur will not be eligible for reimbursement.